Found 15 items. Group: Legal sources. Listing from 1 to 5 [1]. The Council of Europe: Recommendation No.R (81) of the Committee of Ministers to Member States on regulations for automated medical data banks (Adopted by the Committee of Ministers on 23 January 1981, at the 328th meeting) (1981)
[2]. Council of Europe: Recommendation R (2004) 8 of the Committee of Ministers to member states on autologous cord blood banks (Adopted by the Committee of Ministers on 19 May 2004) (2004)
[3]. Council of Europe, Committee of Ministers, Recommendation No. R (97) 5 on the Protection of Medical Data (Feb. 13, 1997). (1997)
[4]. Recommendation R (94) 1 on human tissue banks (1994)
[5]. Danish law on biobanks n° 312 2004 of 5 May 2004 (2004)
Found 12 items. Group: Opinons of Ethics Committees. Listing from 1 to 5 [1]. World Medical Association. Ethical considerations regarding health databases. Washington. (2002)
[2]. LES ENJEUX ÉTHIQUES DES BANQUES D’INFORMATION GÉNÉTIQUE: pour un encadrement démocratique et responsable Document complémentaire (2002)
[3]. French National Consultative Ethics Committee for Health and Life Sciences's Opinion No. 77 on Ethical problems raised by the collected biological material and associated information data : 'biobanks', 'biolibraries'. April 2003 (2003)
[4]. French National Consultative Ethics Committee for Health and Life Sciences's Opinion No. 25 regarding the application of genetic testing to individual studies, family studies and population studies. (Problems related to DNA “banks”, cell “banks” and computerisation). June 1991. (1991)
[5]. French National Consultative Ethics Committee for Health and Life Sciences's Opinion No. 74 on Umbilical cord blood banks for autologous use or for research. December 2002. (2002)
Found 14 items. Group: Policy papers / Reports. Listing from 1 to 5 [1]. OECD Creation and Governance of Human Genetic Research Databases (2006)
[2]. WHO. Genetic databases. Assessing the benefits and the impact on human patient rights. European partnership on patients’ rights and citizens’ empowerment. A network of the World Health Organization Regional Office for Europe. Final report (2003)
[3]. A code of practice for tissue banks providing tissues of human origin for therapeutic purposes: The removal, retention and use of human organs and tissue from post-mortem examination (2001)
[4]. Előzetes Szakmai Koncepció a Személyes genetikai adatok védelméről, a genetikai kutatásokról, teszt és szűrővizsgálatokról, valamint a biobankokról szóló törvényjavaslathoz. A koncepciót készítette: Dr. Sándor Judit és Prof. Dr. Kosztolányi György. Szakkonzulens: Prof. Dr. Falus András (Expert report for the preparation of the new law on human genetics) (2004)
[5]. Fourth Report. Human Genetic Databases: Challenges and Opportunities (2001)
Found 3 items. Group: Webpage of organization. Listing from 1 to 3 [1]. WHO 's webpage on Ethical, Social and Legal Implications of Human Genomics, with link to ELSI GENETICS REGULATION DATABASE (ELSI RED), that is a database of national and international regulations on genetic testing and screening, genetic patents, genetic databanks, gene therapy and pharmacogenomics. (no date specified)
[2]. UK Biobank's webpage (no date specified)
[3]. German National Ethics Council webpage on Collection and storage of biological data and materials (biobanks) (no date specified)
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