You Searched For: Keyword: Biobanks


All together:44
Legal sources:15
Opinons of Ethics Committees:12
Cases:0
Policy papers / Reports:14
Webpage of organization:3
Bibliography:0





Found 15 items. Group: Legal sources. Listing from 1 to 5


[1].   The Council of Europe: Recommendation No.R (81) of the Committee of Ministers to Member States on
      regulations for automated medical data banks (Adopted by the Committee of Ministers on 23 January
      1981, at the 328th meeting) (1981)

  http://www2.garanteprivacy.it/garante/prewiew_paragrafo/1,1731,1413,00.html?sezione=120&PROVA=116&TITOLO=Recommendations
&ARTICOLO=893&LANG=2&PAR=1412&SPAR=&LIV3=
(Keywords: biobanks, data / medical)


[2].   Council of Europe: Recommendation R (2004) 8 of the Committee of Ministers to member states on
      autologous cord blood banks (Adopted by the Committee of Ministers on 19 May 2004) (2004)

  https://wcm.coe.int/ViewDoc.jsp?id=744641&Lang=en
(Keywords: biobanks / cord blood banks, biological materials / stem cells, research)


[3].   Council of Europe, Committee of Ministers, Recommendation No. R (97) 5 on the Protection of Medical
      Data (Feb. 13, 1997).
      
       (1997)

  http://www1.umn.edu/humanrts/instree/coerecr97-5.html
(Keywords: biobanks, data / medical)


[4].   Recommendation R (94) 1 on human tissue banks (1994)
  http://www.coe.int/T/E/Social_Cohesion/Health/Recommendations/Rec(1994)01.asp
(Keywords: biobanks / tissue banks)


[5].   Danish law on biobanks n° 312 2004 of 5 May 2004 (2004)
  http://ec.europa.eu/research/biosociety/pdf/danish_law.pdf
(Keywords: biobanks)


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Found 12 items. Group: Opinons of Ethics Committees. Listing from 1 to 5


[1].   World Medical Association. Ethical considerations regarding health databases. Washington. (2002)
  http://www.wma.net/e/policy/d1.htm
(Keywords: biobanks)


[2].   LES ENJEUX ÉTHIQUES DES BANQUES D’INFORMATION GÉNÉTIQUE: pour un encadrement démocratique et
      responsable Document complémentaire (2002)

  http://www.ethique.gouv.qc.ca/IMG/pdf/BDG-TNET.pdf
(Keywords: biobanks, bioethics)


[3].   French National Consultative Ethics Committee for Health and Life Sciences's Opinion No. 77 on
      Ethical problems raised by the collected biological material and associated information data :
      'biobanks', 'biolibraries'. April 2003 (2003)

  http://www.comite-ethique.fr/docs/en/avis077.pdf
(Keywords: biobanks, biological materials, ethics, ethical)


[4].   French National Consultative Ethics Committee for Health and Life Sciences's Opinion No. 25
      regarding the application of genetic testing to individual studies, family studies and population
      studies. (Problems related to DNA “banks”, cell “banks” and computerisation). June 1991. (1991)

  http://www.comite-ethique.fr/docs/en/avis025.pdf
(Keywords: biobanks / DNA banks, biobanks / cell banks, genetic(s) / testing)


[5].   French National Consultative Ethics Committee for Health and Life Sciences's Opinion No. 74 on
      Umbilical cord blood banks for autologous use or for research. December 2002. (2002)

  http://www.comite-ethique.fr/docs/en/avis074.pdf
(Keywords: biobanks / cord blood banks, research)


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Found 14 items. Group: Policy papers / Reports. Listing from 1 to 5


[1].   OECD Creation and Governance of Human Genetic Research Databases (2006)
  http://www.oecd.org/document/50/0,2340,en_2649_37437_37646258_1_1_1_37437,00.html
(Keywords: biobanks, research / human, research / on human genome)


[2].   WHO. Genetic databases. Assessing the benefits and the impact on human patient rights. European
      partnership on patients’ rights and citizens’ empowerment. A network of the World Health
      Organization Regional Office for Europe. Final report (2003)

  http://www.law.ed.ac.uk/ahrb/publications/online/whofinalreport.rtf
(Keywords: biobanks)


[3].   A code of practice for tissue banks providing tissues of human origin for therapeutic purposes:
      The removal, retention and use of human organs and tissue from post-mortem examination (2001)

  http://www.dh.gov.uk/assetRoot/04/06/50/47/04065047.pdf
(Keywords: biobanks, biobanks / tissue banks)


[4].   Előzetes Szakmai Koncepció a Személyes genetikai adatok védelméről, a genetikai kutatásokról, teszt
      és szűrővizsgálatokról, valamint a biobankokról szóló törvényjavaslathoz. A koncepciót készítette:
      Dr. Sándor Judit és Prof. Dr. Kosztolányi György. Szakkonzulens: Prof. Dr. Falus András (Expert
      report for the preparation of the new law on human genetics) (2004)

  http://www.eum.hu/index.php?akt_menu=3731
(Keywords: biobanks, data / genetic, data / personal / protection of, genetic(s) / screening, genetic(s) / testing, research / genetic)


[5].   Fourth Report. Human Genetic Databases: Challenges and Opportunities (2001)
  http://www.parliament.the-stationery-office.co.uk/pa/ld200001/ldselect/ldsctech/57/5701.htm
(Keywords: biobanks, biobanks / DNA banks)


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Found 3 items. Group: Webpage of organization. Listing from 1 to 3


[1].   WHO 's webpage on Ethical, Social and Legal Implications of Human Genomics, with link to ELSI
      GENETICS REGULATION DATABASE (ELSI RED), that is a database of national and international
      regulations on genetic testing and screening, genetic patents, genetic databanks, gene therapy and
      pharmacogenomics.
       (no date specified)

  http://www.who.int/genomics/elsi/en/
(Keywords: biobanks, genetic(s) / screening, genetic(s) / testing, genomics, legislation, legal aspects, patenting, therapy / gene)


[2].   UK Biobank's webpage (no date specified)
  http://www.ukbiobank.ac.uk/
(Keywords: biobanks)


[3].   German National Ethics Council webpage on Collection and storage of biological data and materials
      (biobanks) (no date specified)

  http://www.ethikrat.org/_english/main_topics/biobanks.html
(Keywords: biobanks, biological materials, data / medical / health)



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Suggested Citation: Data have been retrieved by using the Center for Ethics and Law in Biomedicine's Biolaw Database available at
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